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  Reg. Charity No. 1106008
   
 
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16 Marcus Garvey Mews
London
SE22 0RG

 

ALD Life

ALD Life is a patients' support group working with patients and families with Adrenoleukodystrophy (ALD) and Adrenomyeloneuropathy (AMN) - two rare genetic conditions affecting mainly children aged 4 to 10.The charity was set up in September 2004 by Sara Hunt, a mother of two children with ALD.The charity was established to provide practical advice and information to patients, families, doctors and medical professionals, provide emotional and financial support to patients and families and support further medical research towards finding better treatment or a cure. 

 

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